Thank you again for both your feedback on my questions. This has helped me a lot. I am going to work on getting the right doctors lined up so we can get a better understanding of what is going on and where they stand with these illnesses. I will also look into help groups.

Thank you for your responses. I ended up getting a few questions answered here. I am glad I asked because I was under the impression that the bathing and everything like that would be done by all caregivers, not just ones who specify it. I think both will be necessary long term. The custodial care is not covered by insurance which is very unfortunate. I know in nursing homes, this is covered but we do not want to go that route unless we had no other option.

Thank you for the advice. I know there are some people who do offer their services cheaper but I do feel more comfortable working with an actual business who screens their employees.