Forum Posts

marytyoung
Apr 10, 2020
In Caregiver Resources
If you download books from San Antonio Library System (a free app) the following answer is applicable. You can download ebooks, audio books in any genre. There is still a 3-week loan period, but if the book does not have a waiting list, you can easily renew it. ~ Mary Hi there Mary, Thanks for contacting OverDrive Technical Support! Good news! All ebooks in Libby can be made into large print! To adjust the reading settings in Libby: Open a book from Shelf > Loans. Go to 📷 > Reading Settings. Reading settings include: Text scale: Use the slider to adjust the text size in the book. For a wider range of text sizes, toggle Include accessibility sizes on. 📷 Lighting: Choose bright (black text on a white background), sepia (dark red text on a tan background), or dark (white text on a black background). 📷 Book design: Choose a preset design you like, or select Custom to change the font, justification, line spacing, and text weight. 📷 I hope this helps! Please let me know if there's anything else I can do for you. Stay safe, Marissa OverDrive Technical Support
0
0
7
marytyoung
Jan 30, 2020
In Alzheimers Support
In 2017 Phil participated in a 7-month clinical drug study (SUVN-502) aimed at Alzheimer's patients in the moderate stage. In June, 2017 he barely qualified. This was a double blind study. The meds were one of the following: placebo, 50 mg, or 100 mg of the research medicine. The object was to improve cognition. This month the study was closed and unblinded. Phil was on the 50 mg dose. He had no negative side effects and he also showed no improvement. Other patients saw improvement, but some side effects. Phase 3 is opening up, but not in any San Antonio locations. Dr. Thomas Weiss, the psychiatrist who ran the study, in his effort to continue to study Alzheimer's Disease, has now moved to Clinical Trials of Texas. This company conducts Phase 4 studies on many diseases, including AD. At their website you can sign up for a free memory screening. Clinical studies take time, won't help our loved ones, but will help someone in the future. Maybe someone you love.
Results from Phil's 2017 Clinical Drug Study content media
1
2
12
marytyoung
Nov 06, 2019
In Alzheimers Support
Arden Courts is holding "Painting for a Memory" on December 3rd at 6 PM. You can see the details in the sheet. (And I know the incorrect RSVP date is listed - NMF) I'm going, of course I am!, but thought you all might be interested.
Since we enjoyed painting so much.... content media
0
1
20
marytyoung
Mar 14, 2019
In Alzheimers Support
Phil and I will be at the Memory Cafe tomorrow. Grace Notes Community Choir is cancelled for Spring Break. Mary
0
0
5
marytyoung
Feb 14, 2019
In Alzheimers Support
I am clearing out my email this afternoon and read this article from The Mayo Clinic: Alzheimer's stages: How the disease progresses. https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers-stages/art-20048448 Today we discussed a little about the average life span of a person living with Alzheimer's. Consensus seems to say the average rate of progression is 8 years or 3 to 11 years after diagnosis, with some surviving 20 years or more. Clear as mud! Of course, longevity depends on the degee of impairment at diagnosis.l There seem to be varied ways to discuss the changing stages, none of them concrete. Mayo says 5 stages, Johns Hopkins and AlzAssn says 3 stages. It all amounts to the same. Our loved ones are progressing through all stages. There's a good schematic of the brain changes at https://seniordirectory.com/articles/info/what-are-the-three-stages-of-alzheimers-disease , but you've already probably seen something like that. (I tried to cut and paste the image, but I guess the copywrite cops wouldn't let me!) Approaching this in an intellectual way, the subject is absurdly interesting. It would be better as a movie than having to watch our loved ones live through this struggle. Make memories, take lots of pictures, laugh and love. I appreciate having you all with me on this journey.
1
1
12
marytyoung
More actions